Cri Du Chat Syndrome Support Group - weblink
The Cri du Chat Syndrome Support Group was founded in the mid-1980s by Ann Wilson, a parent of a child with Cri du Chat Syndrome, after discovering there was no support group specifically for this syndrome.
A steering group was formed in 1991, and the group became a registered charity in 1993.
The support group is made up of families and relatives of those with CDCS, as well as research members who have expressed an interest in this condition.
However, the group is open to anyone with an interest or need, whether in the UK or abroad. The group provides information, advice and support through its Clinical Advisory Group, formed by members of the committee and outside professionals.
0845 094 2725 (answerphone)
Cri du Chat Syndrome Support Group
PO Box 73631